cystinosislife orphan-europe.com

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Welcome to Cystinosis Life! Meet 4 young people who share with you their experiences and ideas on living with cystinosis. Discover how Kirsty, Irati, Mark and Geoffrey became who they are. Whatever your life is, theres a way to do most things you want to do, like 99 of the things, you just have to slightly adapt them. Tomo la medicación y nunca la he abandonado porque si no la tomara no estaría aquí. What I have been through the last 26 years makes me the person I am today. Visit the knowledge center.

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Orphan Europe

Big thinking for people with rare diseases. At the forefront of rare disease policy. Hyperammonaemia due to NAGS, IVA, MMA or PPA. Vitamin E deficiency in chronic cholestasis. Foods for Special Medical Purposes. Compliance - our guiding principles. Private section for Healthcare Professionals.

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Home Cystinosis Life

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Welcome to Cystinosis Life! Meet 4 young people who share with you their experiences and ideas on living with cystinosis. Discover how Kirsty, Irati, Mark and Geoffrey became who they are. Whatever your life is, theres a way to do most things you want to do, like 99 of the things, you just have to slightly adapt them. Tomo la medicación y nunca la he abandonado porque si no la tomara no estaría aquí. What I have been through the last 26 years makes me the person I am today. Visit the knowledge center.

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This web site cystinosislife.orphan-europe.com had the following in the homepage, "Welcome to Cystinosis Life! Meet 4 young people who share with you their experiences and ideas on living with cystinosis." We noticed that the webpage stated " Discover how Kirsty, Irati, Mark and Geoffrey became who they are." It also said " Whatever your life is, theres a way to do most things you want to do, like 99 of the things, you just have to slightly adapt them. Tomo la medicación y nunca la he abandonado porque si no la tomara no estaría aquí. What I have been through the last 26 years makes me the person I am today."

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